Diabetes Doesn't Define You

Diabetes Blog Post New Entry

Asking for Help is So Hard Sometimes

Posted by Suzanne on November 29, 2009 at 10:23 AM

I have been diabetic a very long time.  When I was first diagnosed, my mom and dad helped me with shots and tests for the first year.  After that they were not involved other than shopping for food for me, they believed it was my job to manage the disease.  This was a blessing and a curse all at the same time for me.  I get that they were trying to teach me to be independent and be able to manage diabetes by myself but it made it very difficult for me to ask for help when I needed it.  Over the years I never asked anyone to help me, even when I really needed help.


Fast forward to about two and a half years ago.  Not taking care of my diabetes finally caught up with me and I became seriously ill.  My poor husband wanted to help me get control of my diabetes and I pushed him away, telling him "I can do this, I don't need your help!"  He watched me struggle to get control of testing, eating, and shifting my diabetes care focus.  And he stood by me, ready to help with anything at all if I would just ask.  But I didn't ask.  Then I got the pump.  He learned how it worked, read all the documentation, and gave me the space I demanded since I wanted to do it all by myself.  I guess I hadn't realized that my diabetes was a family issue, it didn't just belong to me.


When I got the DexCom last spring, once again I didn't want any help.  I could master this on my own.  My husband watched helplessly as I got angry over pump and CGMS issues, biting his tongue and letting me rant.  A few months ago I was reading some old blog posts of Kerri's over at Six Until Me.  She had pictures of her DexCom sensor in her arm and she said her husband helped her put them there.  My poor abdomen needed a rest from sensors so I decided it was time to ask for help.  I asked my hubby to put a sensor on my arm for me.  I think he understood how hard it was for me to ask for help.


So the first attempt at my hubby putting a sensor into my arm didn't go well.  He was nervous, I was really impatient and kind of mean to him.  Don't get me wrong, the sensor worked fine but I was terrible to him!  We don't fight often but we did fight that day.  I thought alot about why I was so angry with him when he didn't do anything wrong.  That is when I realized how hard it was for me to ask for help.  We talked it out and I promised the next time I would be aware of my behavior.  So yesterday we tried it again and guess what?  When I relaxed and just let him help me, the sensor insertion went fine!  I thanked him for being patient with me and understanding.  I am starting to get how much my diabetes is part of his life too.


So do you find it hard to ask for help?  Do you get angry sometimes?  I would love to get your feedback!


You can be 1happydiabetic too, it's all about your attitude!


Suzanne

Categories: Living With Diabetes, Relationships, Family Members

Post a Comment

Oops!

Oops, you forgot something.

Oops!

The words you entered did not match the given text. Please try again.

You must be a member to comment on this page. Sign In or Register

11 Comments

Reply karend1
11:27 AM on November 29, 2009 
I just hate taking the time to explain to relatives and friends how everything works or DOES NOT WORK, and see their eyes glaze over.

I have been Type 1 for 43 years and until I was in highschool, my mother did my shot/shots every day, as I never could get enough nerve to do it and of course there were no bgs meters back then. When I got married I was on two shots a day and still struggled giving myself a shot, when I went to MDI and two shots of Lantus a day, I finally taught my hubby so he could do them in my arse. To this day I don't think anyone could test my bgs or really gets my struggle and having been on the pump for 7 years. When I went on the CGMS I thought it would be the cure all and of course it bothered me even more and it bothers me that people think that now that I am on the pump I am cured, grrrrr. So no I don't ask for help, cause I just don't feel they get it or want to get it. 43 years and relatively complication free, people think it is no big deal.
Reply Mike Lawson
12:18 PM on November 29, 2009 
It's been tough.

I was uninsured, and unable to afford my insulin...and ended up in the hospital because I couldn't ask for help. Asking for help is really difficult for me - just one of my character flaws, I guess.

While in the hospital, my loved ones made me promise to ask for help if I needed it.
Reply EmPenfold
04:50 PM on November 29, 2009 
With diabetes being a patient-controlled disease (I don't think of us as patients, nor do I like the term disease, but not sure what other term to use?!) it's no surprise that so many of us have a hard time asking for help. We have to get used to doing it all ourselves, whether we like it or not!

I'm very well controlled, I've taken the almost obsessive route according to my doctor - I test up to 10 times a day (normally 6 or 7), I inject heaps too and I keep a close eye on things. This works for me - it gives me the freedom to live my life as if I don't have anything wrong with my pancreas. I read forums / blogs / web sites to learn tricks about control - and that sort of help is easy to accept! However it means I know more about diabetes than the average doctor or even my endo, so when they offer advice I raise an eyebrow and store it in the 'yeh right' part of my brain.

My family are totally ignorant about diabetes, so if they offer help or advice I nod and smile but never take it on. I've become accustomed to ignoring what other people suggest and I'm totally doing it my way.

That's not necessarily a bad thing, but it's made me very much a loner in dealing with my D. I don't want anyone's help, ever, and I'm not sure how I'd cope if I ever actually *needed* help from someone. Thankfully with my tight control it's unlikely to happen any time soon - but diabetes isn't that predictable, is it?
Reply 1HappyDiabetic
11:53 AM on November 30, 2009 
Asking for help... Funny how easy it should be but I find it hard as well. My wife and I have a low blood sugar plan and we communicate to each other when I really need the help. It makes those few scary lows more managable for me.

But is Diabetes predictable? I think we all want to say yes. And I think some if not most of my diabetes is predictable. The times that are not predictable are the ones that frustrate me. Like this Thanksgiving I did all the right things, ate less, counted carbs correctly... but I ended up having a blocked infusion set for my pump and my BGs were High all day.

I think those types of problems are some of the hardest because you can't ask for help when "you don't know what the problem is"

Like Mike I was uninsured for awhile and I never asked for help like I should have. I was too "proud" to ask for sample bottles of insulin and test strips, instead racking up hundreds of dollars each month on supplies.

Help.... another four letter word that doesn't come out of my mouth often, and it should.
Reply Marps
04:36 PM on December 22, 2009 
I have a hard time asking for help too. But like Bill said, it might be because I just don't know what's wrong sometimes. It wasn't until recently that I started to ask for help from my fiance. Around June this past year (after being diabetic for 10 years and with my fiance for 9 years) I finally decided that my diabetes was not JUST mine. It was his too. He wants to have a family with me and to build a life. If I don't take care of myself, then I'm not taking care of our future.

He also changed his behavior and became more involved. Once I finally opened up to him and showed him that I need help sometimes, I now inject in public and he is my bodyguard incase someone thinks it isn't appropriate. I now just need to ask and he will get me help for my lows. I now just need to say "I don't feel good" and he will test my BG for me.

Not to say that I don't take care of myself anymore, but now that he and I are both on the same page, I can communicate easier with him and he usually knows what to do. I also no longer find it offensive when he asks me "Is your sugar okay?" That used to piss me off wicked bad. but, now, I know he's trying to help and I welcome it.

it really has made my life easier.
Reply Marps
04:38 PM on December 22, 2009 
[Marps]

That, and it has brought us closer together. Now that he is more involved in my diabetes, he understands that it's difficult. We celebrate my good numbers and work through my "bad" ones. It's really freeing to have a true partner. Takes the weight off of my shoulders.

It was really scary to open up like that at first. I've had my share of diabetes police in my life, but I trusted that he wasn't going to police me... and he doesn't- for the most part. haha. Sometimes I understand that he can't help it and that's ok w me too.
Reply med464rescue
11:29 PM on March 09, 2010 
I have the same problem I finally gave in and my roommate helps with the insets of my sensor and pump site if they are in my back. I am a paramedic and hate to ask for help but all the guys I work with came up with a plan to help me with lows and problems like sites getting ripped out by a patient or a notorious door handle and they are great I relize I am the one with the diabetes but it effects everyone around me heck I have bad lows when I get them because I have no awareness till it is in the 30's which is bad. hence the CGMS greatest invention known to me besides my pump AKA life support! it really sucked on thanksgiving when my sugers got in the 400's and as high as 500's didn't even have desert!! had to call doc we came up with a plan and fixed it but once agian I had to ask for help.
Reply EMS CHIEF
12:17 AM on May 02, 2010 
If i ask for help people seem to ignore me. Something bad like a low has to happen to make people understand i have no control over Diabetes at times.
I have type2 diabetes, I was diagnosed April2009. I have learned alot both good and bad. I have also at times been angry because of the injections and being tied to my bs monitor. I get angry when poeple feel free to answer or speak up in my behalf. That being said, let me tell you about a 10 year old girl that I am VERY proud of!!!!! She knows what to do in case of an emergency....my lows. She knows who to call, when to call and what to say.She knows how to do my injections, how to load the syringes, from beginning to end. SHE WILL GIVE ME A CERTAIN LOOK THAT SAYS DONT EAT THAT.She knows when i am sick and she will not leave my side until she is sure i feel better! I love this child sooooo much, this child is my grandaughter I have raised her since the day she came home from the hospital she calls me MOMMA!! Brea i love you and thank you for what you do for me.I know she is a child, I let her be a child but she is my HERO!
Reply hucgirl8
01:46 AM on November 15, 2010 
I do get angry, or frustrated when my husband or people close too me want to try to help me eat, exercise, place my cannula here or there, count my carbs, or tell me you shouldn't eat that! I get down right irritated with hearing its all about Diabetes! Then as my lion voice roars I remember the family I have, how loving they are to care, how lucky I am to know that they understand the inner lion roar I impose, because they care even though the loudness gives them ringing ears. My attitude is really bad, as is my behavior with this disease called Diabetes, I want to destroy it, then I remember I can't! So how do I remember to redirect, and share my disease? The ROAR gets turned off after the correct bolus and something too eat, and surprisingly ask like a gracious person, I swallow my pride, I slow down and get some patience, because its very lonely to have the I alone in Diabetes! Hopefully the WE in my family can forgive me!

It is all about your attitude!
Thank you! :)
Reply yadavgal
12:43 AM on November 17, 2010 
\You can avail all these services at amazingly low rates. For any kinds of further information you can always search the net.dreams