|Posted by Suzanne on September 15, 2009 at 1:18 PM|
September 14-20, 2009
My pal Crystal, over at PUMPedUP, did a post yesterday about National Invisible Chronic Illness Awareness Week. She was inspired to do this list from another blogger, Rachel, so I am going to follow their lead!
30 Things About My Invisible IllnessYou May Not Know
1. The illness I live with is: Type 1 Diabetes
2. I was diagnosed with it in the year: 1986
3. But I had symptoms since: October 1986
4. The biggest adjustment I've had to make is: being and adult and really taking care of myself, not living in denial.
5. Most people assume: I did or ate something wrong to get diabetes. That and I must have been a "fat kid" so that is why I ended up with diabetes.
6. The hardest part about mornings are: Waking up!
7. My favorite medical TV show is: Dr. G, it's morbid but I can't help it,LOL
8. A gadget I couldn't live without is: Blood glucose meter.
9. The hardest part about nights are: making it through the night without having a low blood sugar.
10. Each day I take __ pills & vitamins: 8 pills but no vitamins. Gotta love getting additional autoimmune disorders because of diabetes
11. Regarding alternative treatments: I have not tried anything.
12. If I had to choose between an invisible illness or visible I would choose: That's not really a choice, no one should have an illness. But since Ineed to put an answer here, I would choose an invisible illness.
13. Regarding working and career: diabetes adds a layer of complexity just because you never get a break from it. So whether things are going smooth or stressful at work, your diabetes is there and being affected.
14. People would be surprised to know: I'm not as put together as I seem!
15. The hardest thing to accept about my new reality has been: many years of denial and poor self care preceded my born again status of being a "compliant" diabetic. Letting go of the anger I felt all the time about how unfair having diabetes is was the hardest thing. Not to say that the anger doesn?t sometimes show its ugly face every now and then.
16. Something I never thought I could do with my illness that I did was: complete my education.
17. The commercials about my illness: are so off the mark, no wonder most people don't understand diabetes! By the way, can we have a real blood sugar number on that meter please? Not the diabetes nirvana number of 103?
18. Something I really miss doing since I was diagnosed is: eating without thinking about what the carb count is of the food I am about to eat.
19. It was really hard to have to give up: when I was diagnosed way back in the day I was told I could not eat anything with sugar in it. There were few sugar free choices and no one carb counted back then. Needless to say I didn't really give up the candy, cakes, & cookies, I just got good at sneaking them.
20. A new hobby I have taken up since my diagnosis is: I have had lots of hobbies since age 13 so I don't have a witty comment for this one
21. If I could have one day of feeling normal again I would: go to Orlando and go to all the theme parks, ride all the rides, eat all the junk food, and finish off the day with a fancy meal and cocktails!
22. My illness has taught me: I can do anything I put my mind to, anything!
23. One thing people say that gets under my skin is: You know, if you just stopped eating carbs and took this herbal treatment you wouldn't have to take insulin anymore.
24. But I love it when people: let me get my plate first at get togethers! I use to hate this because it made me feel like I was different or defective but now I realize I am special and I get first pick of all the goodies on the table, LOL
25. My favorite motto, scripture, quote that gets me through tough times is: There are three musts that hold us back: I must do well. You must treat me well. And the world must be easy. - Albert Ellis
26. When someone is diagnosed I'd like to tell them: You are not alone, connect with others online or in your town through the ADA or JDRF. Isolating yourself makes it harder to deal with diabetes.
27. Something that has surprised me about living with an illness is: How capable I am of truly managing this illness. I was also surprised how much easier it got to manage when I connected with other diabetics online and in person.
28. The nicest thing someone did for me when I wasn't feeling well was: Gaveme a long, awesome hug.
29. I'm involved with Invisible Illness Week because: I am not embarrassed by diabetes anymore and I realize that isolating ones self, does not work.
30. The fact that you read this list makes me feel: Honored, truly honored.